Privacy Policy

Please read this Privacy Policy carefully before using this Website.

The Website and its Content is owned by Hope for Dystonia Inc. (“Company”, “we”, or “us”). The term “you” refers to the user or viewer of our Website www.hopefordystonia.com (“Website”).

This Privacy Policy describes how we collect, use, process and distribute your information, including Personal Data (as defined below) used to access this Website. We will not use or share your information with anyone except as described in this Privacy Policy. The use of information collected through our Website shall be limited to the purposes under this Privacy Policy, and also our Terms of Use if you’re a client or customer.

Please read this Privacy Policy carefully. We reserve the right to change this Privacy Policy on the Website at any time without notice. In the event of a material change, we will let you know via email and/or a prominent notice on our Website.

Use of any personal information or contribution that you provide to us, or which is collected by us on or through our Website or its content is governed by this Privacy Policy. By using our Website or its content, you consent to this Privacy Policy, whether or not you have read it.

Information We May Collect.

We collect personal information from you so that we can provide you with a positive experience when utilizing our Website or content. We will only collect the minimum amount of information necessary for us to fulfill our obligation to you. We may collect your:

Name and an email address so we can deliver our newsletter to you - you would be affirmatively consenting to this by providing this information to us in our contact forms.
Billing information including name, address and credit card information so that we can process payment to deliver our products or services to you under our contractual obligation.
Name and an email address if you complete our contact form with a question. We may send you marketing emails with either your consent or if we believe we have a legitimate interest to contact you based on your contact or question.
Information from you from a co-branded offer. In this case, we will make clear as to who is collecting the information and whose privacy policy applies. If both / all parties are retaining the information you provide, this will also be made clear, as will links to all privacy policies.

Please note that the information above (“Personal Data”) that you are giving to us is voluntarily, and by providing this information to us you are giving consent for us to use, collect and process this Personal Data. You are welcome to opt-out or request for us to delete your Personal Data at any point by contacting us at hello@hopefordystonia.com.

If you choose not to provide us with certain Personal Data, you may not be able to participate in certain aspects of our Website or Content.

We do not sell, rent, or trade your personal data to third parties. If you are a resident of the European Union (under GDPR) or California (under CCPA), you have the right to request access, correction, or deletion of your data. You may exercise these rights by contacting us at hello@hopefordystonia.com.

Other Information We May Collect.

1. Anonymous Data Collection and Use

To maintain our Website’s high quality, we may use your IP address to help diagnose problems with our server and to administer the Website by identifying which areas of the Website are most heavily used, and to display content according to your preferences. Your IP address is the number assigned to computers connected to the Internet. This is essentially "traffic data" which cannot personally identify you but is helpful to us for marketing purposes and for improving our services. Traffic data collection does not follow a user’s activities on any other websites in any way. Anonymous traffic data may also be shared with business partners and advertisers on an aggregate basis.

2. Use of "Cookies"

We may use the standard "cookies" feature of major web browsers. We do not set any personally identifiable information in cookies, nor do we employ any data-capture mechanisms on our Website other than cookies. You may choose to disable cookies through your own web browser’s settings. However, disabling this function may diminish your experience on our Website and some features may not work as intended.

We do not respond to Do Not Track (DNT) signals from browsers. Users may disable tracking through browser settings, but this may affect website functionality.

What We Do with Information We Collect.

1. Contact You.

We may contact you with information that you provide to us based on these lawful grounds for processing:

a. Consent. We may contact you if you give us your clear, unambiguous, affirmative consent to contact you.

b. Contract. We will contact you under our contractual obligation to deliver goods or services you purchase from us.

c. Legitimate Interest. We may contact you if we feel you have a legitimate interest in hearing from us. For example, if you sign up for a webinar, we may send you marketing emails based on the content of that webinar. You will always have the option to opt out of any of our emails.

2. Process Payments.

We will use the Personal Data you give to us in order to process your payment for the purchase of goods or services under a contract. We only use third party payment processors that take the utmost care in securing data and comply with the GDPR.

3. Targeted Social Media Advertisements.

We may use the data you provide to us to run social media advertisements and / or create look-alike audiences for advertisements.

4. Share with Third Parties.

We may share your information with trusted third parties such as our newsletter provider in order to contact you via email, or our merchant accounts to process payments, and Google / social media accounts in order to run advertisements and our affiliates.

Viewing by Others.

Any information you voluntarily post in public areas of our Website (e.g., blog comments, forums) is considered non-confidential and may be accessed by others. We do not control and are not responsible for how third parties use this information. You assume all risks associated with sharing personal data publicly.

Submission, Storage, Sharing and Transferring of Personal Data.

Personal Data that you provide to us is stored internally or through a data management system. We use third-party service providers for payment processing (e.g., Stripe, PayPal), email marketing (e.g., Mailchimp, ConvertKit), and analytics (e.g., Google Analytics, Facebook Pixel). These providers process your data solely for delivering services and must comply with applicable privacy laws. We assume no liability for third-party data breaches or unauthorized use by these entities.

It is important to note that we may transfer data internationally. For users in the European Union, please be aware that we transfer Personal Data outside of the European Union. By using our Website and providing us with your Personal Data, you consent to these transfers in accordance with this Privacy Policy.

Data Retention.

We retain your Personal Data for the minimum amount of time necessary to provide you with the information and / or services that you requested from us. We may retain certain Personal Data as required by law, for legitimate business purposes, or to comply with regulatory obligations. Once data is no longer necessary for these purposes, it will be securely deleted.

Confidentiality.

We aim to keep the Personal Data that you share with us confidential. We will not disclose your personal data unless required by law, a valid court order, or in the good faith belief that disclosure is necessary to: (1) comply with legal obligations, (2) protect and defend our legal rights, (3) prevent fraud or security breaches, or (4) respond to law enforcement requests. We assume no liability for disclosures made in compliance with legal obligations.

Passwords.

To use certain features of the Website or its content, you may need a username and password. You are responsible for maintaining the confidentiality of the username and password, and you are responsible for all activities, whether by you or by others, that occur under your username or password and within your account. We cannot and will not be liable for any loss or damage arising from your failure to protect your username, password or account information. If you share your username or password with others, they may be able to obtain access to your Personal Data at your own risk.

You agree to notify us immediately of any unauthorized or improper use of your username or password or any other breach of security. To help protect against unauthorized or improper use, make sure that you log out at the end of each session requiring your username and password.

We will use our best efforts to keep your username and password(s) private and will not otherwise share your password(s) without your consent, except as necessary when the law requires it or in the good faith belief that such action is necessary, particularly when disclosure is necessary to identify, contact or bring legal action against someone who may be causing injury to others or interfering with our rights or property.

How You Can Access, Update or Delete Your Personal Data.

You have the right to:

Request information about how your Personal Data is being used and request a copy of what Personal Data we use.
Restrict processing if you think the Personal Data is not accurate, unlawful, or no longer needed.
Rectify or erase Personal Data and receive confirmation of the rectification or erasure. (You have the “right to be forgotten”).
Withdraw your consent at any time to the processing of your Personal Data.
Lodge a complaint with a supervisory authority if you feel we are using your Personal Data unlawfully.
Receive Personal Data portability and transference to another controller without our hinderance.
Object to our use of your Personal Data.
Not be subject to an automated decision based solely on automatic processing, including profiling, which legally or significantly affects you.

Unsubscribe.

You may unsubscribe from our e-newsletters or updates at any time through the unsubscribe link at the footer of all email communications. If you have questions or are experiencing problems unsubscribing, please contact us at hello@hopefordystonia.com.

Security.

We take commercially reasonable steps to protect your Personal Data from misuse, disclosure or unauthorized access. We only share your Personal Data with trusted third parties who use the same level of care in processing your Personal Data as we do. That being said, we cannot guarantee that your Personal Data will always be secure due to technology or security breaches. Should there be a data breach of which we are aware, we will inform you immediately.

While we take commercially reasonable steps to secure your data, we cannot guarantee absolute security due to the inherent risks of transmitting data online. By using this Website, you acknowledge and accept this risk. We are not liable for security breaches beyond our control.

Anti-Spam Policy.

We have a no spam policy and provide you with the ability to opt-out of our communications by selecting the unsubscribe link at the footer of all e-mails. We have taken the necessary steps to ensure that we are compliant with the CAN-SPAM Act of 2003 by never sending out misleading information. We will not sell, rent or share your email address.

Third Party Websites.

We may link to other websites on our Website. We have no responsibility or liability for the content and activities of any other individual, company or entity whose website or materials may be linked to our Website or its content, and thus we cannot be held liable for the privacy of the information on their website or that you voluntarily share with their website. Please review their privacy policies for guidelines as to how they respectively store, use and protect the privacy of your Personal Data.

Children’s Online Privacy Protection Act Compliance.

We do not collect any information from anyone under 18 years of age in compliance with COPPA (Children’s Online Privacy Protection Act) and the GDPR (General Data Protection Regulation of the EU). Our Website and its content is directed to individuals who are at least 18 years old or older.

If we discover that we have inadvertently collected personal data from a minor under 18, we will immediately delete such data. If you believe we may have received data from a child, please contact us at [your email]. We assume no liability for misrepresentation of age by minors.

Notification of Changes.

We may use your Personal Data, such as your contact information, to inform you of changes to the Website or its content, or, if requested, to send you additional information about us. We reserve the right to update this Privacy Policy at any time. If material changes occur, we will notify you via email or a website notice. Your continued use of the Website after such changes constitutes acceptance of the revised policy. We are not responsible for failure to receive notifications due to outdated contact information or email filters. Please review this Privacy Policy periodically.

Data Controllers and Processors.

We are the data controllers as we are collecting and using your Personal Data. We use trusted third parties as our data processors for technical and organizational purposes, including for payments and email marketing. We use reasonable efforts to make sure our data processors are GDPR- compliant.

If you have any questions about this Privacy Policy, please contact us at hello@hopefordystonia.com.

Last Updated: 03/14/2025